Monday, April 27, 2009

Her Peace Was Good

Today we grieve. For my family we grieve our loss of Mom, our loss of Grammy Lois and our loss of Great-Grammy Lois. You come here today to grieve with us and by that simple act our grief is lightened. We thank you for that. Over the past several days we have gathered as families do and shared our memories of Mom. Shared together what we remember of our life with her and realized all over again just how precious memory is.

I remember suppers at the kitchen table in our house on Mabel Street. Mom and Dad and Penny and I in our seats, those seats assigned long ago by an unknown method all families use. As most of you know, food and cooking were not high on her list of priorities, but Mom cooked and every night we ate together. Invariably, if my father or any one of us said the steak was tough or the pork chop dry Mom’s response was, “My piece is good.”

That comment, her comment, ‘my piece is good’ is as easily applied to her life as it was to her supper. To Mom her piece of life was good. She chose to see it that way and by her example we learned to do the same.

Mom taught us a lot about life, about friendship, about love and about faith. She didn’t do this consciously, she did it simply by living, loving us and her friends and serving as an example. She taught us how to welcome people into our lives, not just for a moment but for a lifetime. Friendship wasn’t casual to Mom. Her ‘Club Girls’, women with a 60 year history of friendship continue to support us and until just a few weeks ago Mom talked of her intent to host club one more time. Friendships like that aren’t accidental, they’re intentional.

Friendship was simple to Mom, if she liked someone she invited them into her life. Once they were in, they stayed. Her ability to welcome people extended to my sister’s and my in-laws and Mom was delighted to be connected with the Hartmans and the Smiths and considered them her family as well as ours.

I can’t speak of Mom and not mention humor. Our family has a sense of humor that rivals no other. Mom told us once during a shopping trip that she never worried about being separated from my sister and I in a large store because all she had to do was wait a minute and our laughter would direct her to us. We don’t giggle, we jump into laughter with full force.

Penny and I come by our humor rightly, Mom and Dad raised us on theirs. Dry, spontaneous and quick with a comeback Mom could crack the veneer of any serious occasion, and often did. Her humor appeared at some of the most unexpected moments surprising those around her, and sometimes even those of us who knew her the best.

There were times over the past year or so when we thought we had lost our humor. Things just weren’t very funny. But it was there and it was Mom who found it first. When Medcu paramedics lifted her off the floor of her bedroom and checked her for a head injury they asked “Do you know who the President is?” Her response, “Why, don’t you?” Last week when I bent over her bed at the Barron Center, kissed her and said, “I love you, Mom,” she looked at me and said, “I don’t blame you.”

While we didn’t always know what to expect from Mom, there were times when she was completely predictable. At birthday parties or Christmas she was the first to suggest we open the presents, usually just after she had had cake or candy. We could all count on cookies in her cookie jar and candy in the silver dish on the end table. Mom had a sweet tooth. Cookies, cake, pie, candy the form was irrelevant. She loved sweets and Penny and I often found candy wrappers or candy itself in the pockets of her sweaters, jacket or slacks. One of the CNAs at the Barron Center took me aside one day and asked if we could bring in more pajamas for Mom. I was surprised because she had several pairs there already. When I asked why she said they didn’t like to put her to bed with chocolate on her nightgown. That was Mom.

As a girl Mom and her friends spent hours at the movie theatre. Mom loved the movies and Penny and I worried that Kenny and Jim would have to pass a test on Gone With the Wind before they’d be allowed to marry us. I was named for Rhett and Scarlett’s daughter and am thankful that my father stepped in and refused to go with Bonnie Blue! Mom carried her crush on Clark Gable well into her 70s, and shocked us all when she replaced him with George Clooney.

I look around this sanctuary today and realize how much of our life is tied to this church. Mom taught Sunday school, belonged to the Women’s Federation, sold books at the Church Fair and served on many committees. Dad was a Trustee and a Deacon and it seemed like they were always here ‘waiting on tables’. Immanuel is woven into the fabric of the Cash family and extends beyond to a larger circle of family and friends. Mom and Dad were married here and raised us in this church. Penny and Jim and Kenny and I were married here as were many of the Hartmans. Our last family gathering in this sanctuary was 6 months ago today when our daughter Michelle was married. Dad’s funeral was here 25 years ago and today we bring Mom full circle.

In recent months Mom talked a lot about her faith. It was rock solid and we are comforted to know through her visits with Deborah that she was not afraid. However, once again we got the unexpected when she announced to Penny last week that Jesus was a Baptist. As if this weren’t enough, she went on to clarify that even though the Catholics tried to claim him, he was a Baptist.

Mom was a lot of fun. She stirred competition between her sons-in-law by telling them both they were her favorite. She made it even more interesting when she included Penny’s brother-in-law Greg in the running. This favorite game spilled over to her daughters and grandchildren and has been the subject of much good humored debate. Penny and I called her bluff many times when we stood before her and asked which of us was the favorite. We both were. When Bill walked into her room at the Barron Center she’d wink and smile and ask him if he wanted to be her boyfriend. She particularly liked to do this if one of the young CNAs was within earshot. She’d drop a comment about her father’s six wives into random conversations just to see people’s reactions. When Penny and I would argue, as siblings do, she would tell us she didn’t understand why we fought because she and her sister Muriel never fought once when they were kids. We were 10 or 12 before it dawned on us that they didn’t argue because they never lived together!

Mom’s piece was good. She lived by the rules all her life and had a few of her own that she left with us:

Give your children two things, roots and wings. As long as those wings don’t take them out of Portland.
Surround yourself with good people.
Love simply.
Laugh often.
Neatness doesn’t count.
Faith is everything.
Some things just have to be done.
Life isn’t fair
If it’s not one thing, it’s two.
There is no such thing as too many books.
Chocolate really does make it better.

Rarely without a book in her hand or a smile on her face, Mom lived her life with simple grace and dignity. While others rage against what life offers, Mom accepted it all with thanks and joy and carried no sorrow for long. We could use more people like her in the world.

We heard Mom say many times, many, many times, “Getting old is tough, but it beats the alternative.” I picture her in heaven now and believe she’s changed her mind.

Tuesday, April 21, 2009

A Life Well Lived....

We said farewell to our mother this afternoon. She died as she lived, surrounded by the people she loved. She faced this day with courage that I can only hope I have inherited from her. We held her hands and she held ours. She looked at us directly, one by one and then she was gone.

I don't know how I will live my life now, my life without parents, but I know I have a model by which to move on. It is trite and easy to say of anyone after they are gone that they were wonderful, that they loved life, that they touched all those who knew them. But for my mother all this is true.

We gathered at her house this evening, our family. Her children, grandchildren and great-grandchildren. We did what all families do after a death, we talked of our time with her as we ate our dinner in her dining room. We told the stories we'd heard over and over again for the past few years and with their telling they wove themselves deeper into our family.

When dinner was over and it was time for us to leave each other we turned to her player piano, her cherished possession, the piano she played as a child, and we sang. Voices raised together in complete disharmony we sang Mom to heaven with Somewhere Over the Rainbow and Goodnight Irene. And with those songs I know she and Dad sang with us.

Monday, April 20, 2009

Beside My Mother's Bed

There are so many thoughts that run through my mind as we struggle with my mother's dementia. I remember something my father said before he died (at 58). He had heart disease and knew his life expectancy was limited. He told me that one thing he feared was that when he died people would say, "He'd been sick for such a long time". I 'kind of' understood what he meant then. I truly understand it now.

My father was not a man who cared what other's thought or said about him so to think that what he feared was what people would say is to underestimate him. What I believe he truly feared was that his life would not have mattered. That when he was gone he would be forgotten and his time here, however brief wasn't meaningful. It was and as I sit at my mother's bedside and look at the same photo albums over and over again with her I see somewhere in the recesses of her blank eyes and expressionless face the same worry. I see her look at the pictures of her family and friends in search of confirmation that her life mattered, that she was here and it was worth it. I look at her now, under 100lbs, able to tolerate only sips of fluids and maybe a spoonful or two of blended food and want her to know that not only did her life matter but it still does. It matters to me and to my sister, to our husbands and our children, to her friends and to her Pastor. She matters to all of us.

She is taking morphine now. For people who do not live in my world, the world of healthcare, the mention of this drug means nothing more than she is getting a drug for pain. For my Nurse and Physician friends, thank you for understanding on a different level the implications of this new regime. You now understand my blog absence for these past days. I didn't know there were so many sudden changes in a chronic disease.

My sister and I still visit our mother at least 6 days each week but we no longer walk with her to the Dayroom for Oprah, tea and cookies. These days we take turns, one of us in the chair by her bed the other on her bed at her feet. We think she still knows who we are but can't remember the last time she said our names. I think of many 'last times' but didn't imagine my name in my mother's voice would be among them and wish I had recognized it when it happened so I could hold onto it now. Before I found myself at her bedside I thought of our lasts in much grander terms, I thought in terms of our last Christmas, last Birthday, last Mother's Day. I had no way to know then that those days, those events are where we put so much energy but in the end are of less importance than the other days, all those everydays.

When my mother dies I know some people will offer comfort by saying that she had been in a Nursing Home, she'd been 'sick' for so long. They'll say these things and think they are offering comfort. They will utter my father's fear. When I hear this what I will picture is my parents together, together in lives that mattered, lives that made the world a better place and I will hear their voices as they say our names.

Tuesday, April 7, 2009

What's In A Name?

Someone at the Nursing Home helped my mother make a Birthday card for me. It has my sister's name on it. I hate this disease.

Monday, March 30, 2009

The Cat Who Misses His Family

There are four pictures on the door to my mother's room. Cut from the last calendar she hung in her home these pictures are drawings of cats, her favorite animal. Her cats rest against the backgrounds of the four seasons, and daily she mentions to me how much she likes to look at them. I like them, too, although we disagree on which one we like best (for me it's winter, she claims summer).

We play a game with these cats, a "Which One's Your Favorite" game. I watch her look at them in the same way you look at a newly hung picture on your living room wall, a studious look, a look that gives thought to placement, balance, color. She does this every afternoon and even though I choose a different cat each time, she does not. She always chooses the cat of Summer.

In this picture her cat has yellow yarn wrapped around his paw, the ball sits to his left. In the window behind him, daisies and sunshine. She likes this cat because to her he is sad, visibly sad with eyes focused on the yarn. She watches him as I ask why he is her favorite. Her answer, "Because they've gone to the beach without him and he knows it."

Her ability to weave a story, to imagine stories behind pictures appeals to me and I ask her about the others. The Winter cat, staring at the cardinal through the window crusted with snow "wants to bite the bird". The Fall cat sitting in the basket of leaves "is happy", the Spring cat surrounded by tulips is "glad to be outside". The stories, her stories of her cats, as immobile as the pictures themselves fill some of our time together and with each day that passes these stories, her stories, remain between us. Between us and the cats.

Last night, when sleep wouldn't come for me, I thought about all she has forgotten and the new memories that fail to take hold in her. Her great-grandchildren, visitors, friends and even the staff who care for her day after day arrive new to her each day. But her cat, this summer cat with his sadness based in loneliness, she remembers. I can't help but wonder if she remembers this because it is what she lives and can't voice. That when we come into her room it is for fleeting moments, short-lived stretches of her life interrupted by extended hours without us. Those hours when we are at the beach without her and she knows it.

Monday, March 16, 2009

Happy Birthday, Mom

On this day 84 years ago my mother was welcomed into the world, held and loved by her parents and grandparents. She was a baby with all the promise of life ahead of her. I am sure her parents saw in her what I saw in my children when I first held them. What I saw in my grandchildren on their birth days. I never met my grandmother but today I knew that at one moment of this day she held her daughter and was amazed at her perfection, her beauty.

I found myself on the verge of tears today. Not just once or twice, but repeatedly. Small things, little things caused the lump in my throat to swell and my eyes to water. I didn't give in to it, that lump that closes my throat. I forced it down, swallowed it again and again. When I sat beside my mother's bed this evening (she didn't feel like walking all the way to the dayroom) and listened to her tell the same story I realized how short a span of time 84 years really is and just how much life fills those years. How many people and places and times fill in our lives and how we hardly notice its happening until so much of it has passed. How when we are young we look only forward and when we are old we look only back. In the middle we're too busy to look one way or the other.

My daughters and granddaughter, my sister's daughter, son-in-law and grandson visited my mother this weekend. We sat together in the dayroom of the Nursing Home and wished her a Happy Birthday. We talked together and pretended everything was fine, that celebrating a Birthday in a Nursing Home was normal, that forgetting the granddaughter in front of you was born on the same day was okay. That having her ask who she had come with when she has been in the same place for 5 months was not unusual or alarming. Around us other families altered their definition of normal.

I received an email from a friend today. A friend who struggles as I do, as we all do, with life changes and decisions. Her father turned 85 last week and before he greeted his grandchildren she got him ready. I picture her with him, adjusting his shirt, shaving his chin then watching him as the family gathered. Gathered to create another memory.

Many of us don't look too far forward these days. I don't look too far back, either. Perhaps that means I have reached the middle ground. Or maybe I can only comprehend the immediate. Today the immediate is that my mother is with us. 84 years after her arrival in this world she is here and she is greatly loved. There are worse thing than this.



Tuesday, March 10, 2009

Missing Conversation

There are a lot of things I miss about my mother. Things I don't suppose I gave much thought to before they were gone. It sounds trite to say that you really don't know what you have until it is gone, but it is true. Cliches are truths afterall. Today I missed the part of her that was interested in life, fascinated with the movies and the stars who filled her teenage years, up to date with all her friends and their families and aware politically of what was happening in the news both here and around the world.

We don't have new conversations anymore and today I learned that while she repeats a story to me, a story about an old boyfriend and how her father told her if she married him she'd be miserable, to my sister she tells a different one, the one about her sister's mother. (My Aunt was adopted by a family in Rockland in 1928....long story....I bet my sister could tell it!) Clinically we call this scripting, the process through which a person suffering from dementia repeats a story over and over again because it is safe. This script is one they are sure of when they are unsure of so much else. The human brain is an amazing organ.

I have so much to tell her, so much I want to share with her. I want her to know that we just spent the weekend with cousins up north. I want her to hear how they are and how much fun we had and how beautiful it was out on the lake standing on 30 inches of ice. I want her to know what a good reader her great-grandson is and how sweet he is to read to his baby sister whenever she asks. I want her to know my sister is going to be a grandmother again and how we are all looking forward to another baby among us. I want her to know how proud I am of my daughters and what beautiful women they have become. I want her to know what projects I'm working on at the hospital and that I testified at the State House and on Capitol Hill. I want her to know that I miss her.

Several years ago I drove down Stevens Avenue and when I stopped at the traffic light my mother was in the next car. I honked the horn and she looked up and smiled. Her smile was not just a friendly hello kind of smile but a genuine smile that reflected true pleasure at my unexpected appearance. I have always remembered that day and her smile because at that moment I knew how much my mother loved me. I felt it in her smile and it felt like everything else faded away and my mother's love surrounded me with such sincerity and depth that nothing else mattered. Imagine being that lucky, to be loved so purely.

I want my mother to know that I remember that day and that sensation of being loved by her. I want my mother to know that I feel the same way about her. I want my mother to know that I will always be grateful to her for the mother she was. I want my mother.